Muscular Dystrophy and Facing Death
Many cases of MD are terminal and it can help greatly to talk to others who understand your experience first-hand
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Give Back
What helped you when you got the diagnosis of MD and underwent treatment? Take a look back at your journey and share with others what made it easier and what you wished you would have known or done during your experience. You can create a TSC profile, reach out to other survivors, join support circles, or share your story by following the links at The Survivors Club.To support muscular dystrophy research and education, visit this site:
Charity Navigator Rating: Muscular Dystrophy Association
Dealing with the possibility of death is something nearly all of us struggle greatly with. But in most cases MD is a terminal disease, though a lot depends on the type of MD you have. It can help greatly to talk to others who understand your experience first-hand:
You can plan to leave a legacy gift to the Muscular Dystrophy Association to help them continue their work:
When You're Facing Death
- FamilyDoctor.org: Cancer - Palliative Care
- MedlinePlus: Hospice Care
- MedicineNet.com: Loss, Grief and Bereavement
Muscular Dystophy Forums and Blogs
- eHealthForum: Muscular Dystrophy Forum
- BeckerMD.org
- Muscular Dystrophy Patients United
- Continually Captivated
- BlogBioTech
