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Survivors Say: Best Resources for Muscular Dystrophy

The Big Picture

Muscular dystrophies (MD) are a group of more than 30 genetic diseases in which the muscles that control movement grow progressively more weak. Some forms of MD are seen in infancy or childhood, while others may not appear until middle age or later. The disorders differ in terms of the distribution and extent of muscle weakness (some forms of MD also affect heart muscle), age of onset, rate of progression, and pattern of inheritance.

The National Institute of Neurological Disorders and Stroke has information on the types of MD and their treatments:

National Institute of Neurological Disorders and Stroke: Muscular Dystrophy: Hope Through Research

Do you know the signs of MD? These pages explain how to recognize muscular dystrophy and how it's diagnosed:

Your Muscular Dystrophy

There are nine major types of MD, each with its own symptoms and treatment options:

Muscular Dystrophy Association: Diseases

It's important to communicate well with your doctor so you are sure you understand the type of MD you have and how you'll start treatment - here are some good questions to ask:

FreeMD: Muscular Dystrophy Treatment - Questions For Doctor

Muscular Dystrophy Myths

Books Survivors Recommend about Muscular Dystrophy

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