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Dealing with MD

After being diagnosed with MD, a serious, degenerative disease, you are likely to experience a flood of emotions. It's important to talk now with your loved ones and to reach out to support centers - online or in person -- during the initial stages of your journey:

Information and Recommended Links for Survivors of Muscular Dystrophy

Insurance & Work Matters

Insurance Matters

You may qualify for Social Security Disability, regardless of your age:

Work Matters

Help make workplaces more accessible to people with muscular dystrophy and other disabilities:

Georgia Institute of Technology: Workplace Rehabilitation Engineering and Research Center

Health-care Providers Who Can Help

As someone with MD, or the parent of a child with MD, you may see physical therapists, speech therapists, orthopedic surgeons, and/or your regular primary care physician (or pediatrician). Because MD is genetic, you may decide to see a genetic counselor, too:

University of Rochester Medical Center: Educational Resources - Genetic Counseling & Testing

Resources to Find Doctors

The Emotional Rollercoaster

Having muscular dystrophy is a very emotional experience. It's important to do your best to continue living your life as normally as you're able, participating in the same daily activities you've always done. A support group can be invaluable as you learn to manage the extreme feelings living with MD can bring up:

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